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UN MODO SEMPLICE PER AIUTARCI DEVOLVI IL TUO 5X1000 ad APDIC codice fiscale: 91328810378

in evidence

Membership to the association

On the occasion of last December it has started the RENEWAL OF PASSES FOR THE CURRENT YEAR. Those who were not present, or people interested in joining should contact the secretary, Mrs. Luisa Baesi (tel. 345 8491152 - luisa.baesi@gmail.com ), available for any further information.

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Apdic News

24-9-2011

The patient: individuals’ and associations’ potentialities

Synopsis of the speech made in Bellaria on 24th September 2011.

The word “patient” recalls in each of us a series of images, sensations and meanings according to our personal life experiences, knowledge, beliefs and values.
The different ways in which the word “patient” can be meant bring about different behaviours both of the people who are responsible for the taking care of the patients and of the patients themselves who deliberately or forcedly trust to the cares of someone else.
Our point of view is based on the assumption that the patient is first of all a person and that, being a person, he/she cannot be just a passive receiver of treatment directions, but he/she can act actively in the treatments which are suggested and urged by the medical staff. The patient can be the main protagonist in the cure process.
To make it true, firstly it is necessary that the patient is listened, and that he/she can be free to express his/her needs. This is what we - as association - have done by means of two inquiries in which many patients have taken part. From these inquiries, following desires have emerged:
   • More information about the disease and about the devices which can be implanted;
   • Share the experiences;
   • Emotional and material support;
   • Representation and protection;
   • A quiet everyday life.

Following needs stand out among the ones which have been detected:
   • the need of personalising the relationships of taking care (of nursing). For this purpose, it is required to be cured always by the same doctor or by a team of doctors who adopts the same quality indicators for their services in order to confer them an equivalent value no matter which doctor, paramedic or technician supply the service;
   • Relationship care. Personal troubles exist and they come out in different ways which reflect the characters and life context of the single person. To have the possibility to express one’s own trouble within protected situations is very helpful, and in this regard APDIC can do a lot;
   • Joint among institutions, to facilitate the carrying out of functions which require movements, authorisations, enquiries, documents as well as the prosecution of a job.

For all this, and for the management of the conical condition which is typical of the recipients of cardiac implantable electronic devices, it is necessary that two conditions, for whose fulfilment APDIC is in the front line, come true:
1. To reduce the asymmetry doctor/patient to confer more effectiveness to the taking care / cure. It must be remarked that in the acute conditions, the asymmetry may be of help not to jeopardize the effectiveness of the treatment. In the chronic conditions, the assistance requires regular, wide and long term contacts. This kind of assistance implies that the sanitary system is arranged differently from how it handles the episodic contact which is foreseen for the acute conditions. This does not mean that a sort of confusion of roles or a confluence which make the doctor indistinguishable from the patient must be fulfilled. What changes is not the role (or the status), but the conditions upon which the relationship is constructed. The time of the relationship must include the dialogue and listening by both sides;

2. Another condition which is strictly bound to the first one is that of making the patient more capable and responsible in his/her own taking care. In the chronic conditions, it is necessary to valorise the role and responsibility of the patient, strengthening his/her knowledge and action strategies as well as involving his/her nearest relatives and general practitioner. To free the patrimony of experiences, knowledge and motivation which already is in the patient (but which is extremely undervalued in the asymmetric relationships), it is necessary to:
    a. give more information about his/her health and cure strategy. Thanks to information, patients trust medical staff more, and they are put in the condition to act responsibly;
    b. give the possibility to act with a certain level of autonomy ( they can decide what to do and when to do it) even though within certain bounds which have been agreed with the sanitary staff;
    c. give the possibility to face his/her own life context (relatives and friends) as well as other patients, to stimulate a real team work instead of the usual hierarchies which put at the top who give directions (the medical staff) and at the bottom who has to follow them (the patients).

The National Sanitary Service and our association can cooperate to free the internal resources of each recipient of a cardiac implantable electronic device no matter which pathology brought about the implantation of the cardiac device. The whole system shall be finalised to the full realization of each person. Everyone has the right to construct his/her own desired future and possibly to be happy.

For all this, the Association promotes the alliance doctor-patient based on trust and cooperation, and it rejects competitive and claiming forms which unfortunately are gaining more and more ground in the human relationships as well.

Armando Luisi
Vice-president APDIC